The Dylan Samuel Freeman Story

About Alexander's Disease

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OUR HERO - 11/20/1996 - 4/30/2004

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Visit the following links to find out more information about the United Leukodystrophy Foundation:
E-mail: The United Leukodystrophy Foundation is dedicated to helping children & adults who have leukodystrophy & by assisting the family members, professionals. The ULF is committed to the identification, treatment & cure of all the leukodystrophies through programs of education advocacy, research & service. Foundation formed by Quarterback Jim Kelly & his wife Jill. Their son Hunter has Krabbes Disease another Leukodystrophy. The Myelin Project works to accelerate research on myelin repair. Myelin is damaged by multiple sclerosis, Leukodystrophies and many other demylenating disorders. The Krabbes Family Network. Very supportive, caring people who deal with Krabbes disease. Resources on Adrenoleukodystrophy, Alexander's Disease, Krabbes Disease, Metachromatic Leukodystrophy and Refsums Disease.
Make a Wish Foundation Making kids dreams come true!!!